Pasquaney 2011

Janet A. Deatrick, PhD, RN, FAAN

Professor Emerita of Nursing

Focusing on potentially vulnerable populations who are at risk for health care disparities, Dr. Deatrick provides leadership regarding children with chronic conditions and cancer, family management styles, health-related decisions, advanced practice pediatric nursing, and qualitative research methods.

Focusing on potentially vulnerable populations who are at risk for health care disparities, Dr. Deatrick provides leadership regarding children with chronic conditions and cancer, family management styles, health-related decisions, advanced practice pediatric nursing, and qualitative research methods.

Education

  • PhD, University of Illinois Medical Center, 1982
  • MSN, College of Nursing and Health, University of Cincinnati, 1972
  • BSN, College of Nursing and Health, University of Cincinnati, 1970

Social Justice

Throughout Dr. Deatrick’s career, her research, research training, teaching, and practice have been committed health equity and participatory strategies to understand the lived experiences of individuals, families, and communities who have been under resourced, underserved, and inappropriately served by our society and health care system. She continues to develop methods to foster the inclusion of youth, young adults, their families, and communities in research; to pioneer novel qualitative and quantitative research methods; to create mixed methods designs for potentially vulnerable populations; and to co-create and implement interventions for at risk populations. She is an advocate for and expert in culturally sensitive care, training, and research. She served as Associate and Co-Director and then Director of the Center for Health Equity Research (formerly Center for Women, Children, and Families and the Center for Health Disparities Research) and of the Center’s T32 Training Grant regarding vulnerable populations from 1998-2016 and the Shearer Endowed Term Chair in Healthy Community Practices from 2013-2016.

Teaching

The curriculum for the Pediatric Acute Care Nurse Practitioner Program, designed in collaboration with Jane Barnsteiner, PhD, FAAN, RN and Terri Lipman, PhD, FAAN, RN, was the first in the country to educate pediatric nurses for advanced practice across the continuum of care for acutely, critically, and chronically ill children. It still serves as a model for other, similar programs throughout the nation. The curriculum for the Pediatric Acute/Chronic Concentration focuses on nurse practitioner competences while emphasizing family and community context of care as well as leadership. In addition, she and Wendy Hobbie designed the Oncology Concentration which serves as an international hub of educating pediatric oncology nurse specialists.

In recognition for her contributions as an educator, she received the Christian and Mary Lindback Award for Distinguished Teaching at the University of Pennsylvania in 1995 and the Barbara J. Lowery Doctoral Student Organization Faculty Award in 2013.

Research

Dr. Deatrick’s research encompasses a unique blend of substantive, theoretical, and methodological contributions. Her efforts to explicate children and family’s involvement in health-related decisions and her careful observations of family management of childhood illness provide invaluable information to clinicians. Simultaneously, Dr. Deatrick’s more theory-based efforts provide direction for pediatric nursing and research. She is also well respected for her methodological expertise in qualitative, mixed methods, and family research.

Dr. Deatrick is best known for her research with Kathleen A. Knafl, PhD, FAAN of the University of North Carolina Chapel Hill, and their development of the Family Management Measure, which systematically recognizes multidimensional family processes involved in disease management for children with serious health problems. They are recently completed validation of an instrument to measure family management styles for children with chronic conditions and cancer, the Family Management Measure (FaMM) . In recognition for her contributions to nursing research, she won numerous awards for her research, most recently, the 2016 University of Pennsylvania School of Nursing/Claire M. Fagin Distinguished Researcher Award and the 2019 Association of Pediatric Hematology/Oncology Nurses Distinguished Researcher Award.

Her present research focuses on caregivers and adolescent and young adult survivors of childhood brain tumors who are living at home with their parents. This research extends family management into oncology populations and provides a family context to caregiving research. She and her research team are presently pilot testing Training in Problem Solving (TIPS) for Caregivers of Childhood Brain Tumor Survivors, a web-based, coach assisted intervention for high-risk caregivers as well as investigating the feasibility of implementing TIPS for caregivers outside of CHOP.

Clinical Practice

Through a year’s sabbatical study (2001) with the Psychosocial Oncology Team at The Children’s Hospital of Philadelphia, Dr. Deatrick participated in training and research involving cognitive behavioral and family systems interventions for families with long-term survivors of childhood cancer. She is currently working with members of the Survivorship Team at The Children’s Hospital of Philadelphia regarding research-based practice initiatives and Nemours Center for Healthcare Delivery Science on various initiatives regarding implementation science.

Selected Career Highlights

Conferences

Deatrick, J.A., Hammer, S.N., Perez, M.N., Knafl, K.A., Knafl, G.J., Barakat, L.P. (Submitted) Evaluating a Family and Self-Care Model for Young Adult Survivors of Childhood Brain Tumors. International Family Nursing Conference. June 2023.

Perez, M. N., Deatrick, J. A., Barakat, L. P. (Poster) End of Treatment Condition Management Ability and Family Functioning Among Pediatric Cancer Caregivers: Examination of the Moderating Effects of Race and Ethnicity. Poster. The Society of Pediatric Psychology Annual Conference, Chicago, IL. 2023, April

Schwartz, L; King-Dowling, S. Faust, H., Darabos, K., Bressler, S., Li, Y., Deatrick, J..A. Jankowski, M., Zelley, K., Baldino, S.. DeRosa, B., MacFarland, S., Brodeur, G. (Symposium). Adjustment of Caregivers of Children Tested for a Genetic Cancer Predisposition. Society of Pediatric Psychology Annual Meeting Chicago, IL. March 2023.

Deatrick, J.A., & Knafl, K. Practical Guidance for undertaking qualitative research Educating and Developing Bioethicists in Tanzania (ENGAGE). D43 TW011809-01. C. Ulrich, PI February 24, 2023.

Deatrick, J.A., Barakat, L., Scialla, M., & Kazak, A. (Podium Presentation) Examining Anti-Racist Approaches in an Ongoing Trial Implementing Universal Family Psychosocial Risk Screening in Pediatric Cancer. 15th Annual D&I Conference, Washington, DC. December 2022.

Heads Together: Helping Families Make Difficult Decisions. (Family workshop). Pediatric Oncology Group Of Toronto Multidisciplinary Symposium on Childhood Cancers Central Nervous System Tumors, Toronto, Ontario, Canada. November 2022.

Other

Oncology Nursing Foundation’s 2022 Research Grant review team

Selected Publications

  • Polek, C., Hardie, T., & Deatrick, J. A. (2021). Experiences of Asian women who live in urban environments and are breast cancer survivors. Journal of transcultural nursing: official journal of the Transcultural Nursing Society, 1043659620988775. Advance online publication. https://doi-org.proxy.library.upenn.edu/10.1177/1043659620988775

  • Knafl, K. A., Deatrick, J. A., Gallo, A. M., & Skelton, B. (2021). Tracing the use of the family management framework and measure: A scoping review. Journal of family nursing, 27(2), 87–106. https://doi.org/10.1177/1074840721994331

  • Canter, K. S., Strang, A., Franklin, M., Wilks, S., Geiser, D., Okonak, K., Deatrick, J. A., & Chidekel, A. (2021). A qualitative exploration of sleep habits and intervention needs among youth with cystic fibrosis. Journal of clinical psychology in medical settings, 10.1007/s10880-021-09774-4. Advance online publication. https://doi-org.proxy.library.upenn.edu/10.1007/s10880-021-09774-4

  • Boyden, J. Y., Ersek, M., Deatrick, J. A., Widger, K., LaRagione, G., Lord, B., & Feudtner, C. (2021). What do parents’ value regarding pediatric palliative and hospice care in the home setting? Journal of Pain and Symptom Management, 61(1), 12–23. https://doi-org.proxy.library.upenn.edu/10.1016/j.jpainsymman.2020.07.024

  • Atkins, R., Johnson, S., Jakubowski, T.L., Perron, T., Lewis, H., Gadaleta, D., Quosja, A. Finkelstein, D. Stellmacher, T., Deatrick, J.A. (January 2021), Strategies for coping with depressed mood in low income and ethnic minority mothers at risk. Journal of Nursing Practice Applications & Reviews of Research, 11 (1), 21-35

  • Psihogios, A. M., Schwartz, L. A., Ewing, K. B., Czerniecki, B., Kersun, L. S., Pai, A., Deatrick, J. A., & Barakat, L. P. (2020). Adherence to Multiple Treatment Recommendations in Adolescents and Young Adults with Cancer: A Mixed Methods, Multi-Informant Investigation. Journal of adolescent and young adult oncology, 9(6), 651–661. https://doi-org.proxy.library.upenn.edu/10.1089/jayao.2020.0013

  • Deatrick, J. A., Knafl, G. J., Knafl, K., Hardie, T. L., Bressler, S., Hobbie, W., Bratton, K., Dominguez, M., Guzman, C., Rees Papinsick, A., Voisine, S., & Barakat, L. P. (2020). Mothers’ and fathers’ views of family management and health-related quality of life for young adult survivors of childhood brain tumors. Journal of psychosocial oncology, 1–17. Advance online publication. https://doi- org.proxy.library.upenn.edu/10.1080/07347332.2020.1844845

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