Janet A. Deatrick
Focusing on potentially vulnerable populations who are at risk for health care disparities, Dr. Deatrick provides leadership regarding children with chronic conditions and cancer, family management styles, health-related decisions, advanced practice pediatric nursing, and qualitative research methods.
Because of Dr. Deatrick’s expertise in caring for children with chronic conditions and cancer, family science, and qualitative research methods, she is sought out to teach and to provide consultation regarding the Pediatric Acute Care Nurse Practitioner Program (Acute-Chronic and Oncology) and leadership in the Center for Health Equity and School and University wide research training initiatives.
The curriculum for the advanced practice pediatric programs, designed in collaboration with Jane Barnsteiner, PhD, FAAN, RN and Terri Lipman, PhD, FAAN, RN, was the first in the country to educate pediatric nurses for advanced practice across the continuum of care for acutely, critically, and chronically ill children. It still serves as a model for other, similar programs throughout the nation. The curriculum is nurse practitioner competences while emphasizing family and community context of care as well as leadership.
In recognition for her contributions as an educator, she received the Christian and Mary Lindback Award for Distinguished Teaching at the University of Pennsylvania in 1995 and the Barbara J. Lowery Doctoral Student Organization Faculty Award in 2013.
Dr. Deatrick’s research encompasses a unique blend of substantive, theoretical, and methodological contributions. Her efforts to explicate children and family’s involvement in health-related decisions and her careful observations of family management of childhood illness provide invaluable information to clinicians. Simultaneously, Dr. Deatrick’s more theory-based efforts provide direction for pediatric nursing and research. She is also well respected for her methodological expertise in qualitative, mixed methods, and family research.
Dr. Deatrick is best known for her research with Kathleen A. Knafl, PhD, FAAN of the University of North Carolina Chapel Hill, and their development of the Family Management Measure, which systematically recognizes multidimensional family processes involved in disease management for children with serious health problems. They are recently completed validation of an instrument to measure family management styles for children with chronic conditions and cancer, the Family Management Measure (FaMM) . In recognition for her contributions to nursing research, she won the Excellence in Nursing Research Award for the Society of Pediatric Nurses in 1997 and the 2007 Eastern Nursing Research Society’s Suzanne Feetham Nurse Scientist Family Research Award for Senior Investigators.
Her present research focuses on caregivers and adolescent and young adult survivors of childhood brain tumors who are living at home with their parents. This research extends family management into oncology populations and provides a family context to caregiving research.
Through a year’s sabbatical study (2001) with the Psychosocial Oncology Team at The Children’s Hospital of Philadelphia, Dr. Deatrick participated in training and research involving cognitive behavioral and family systems interventions for families with long-term survivors of childhood cancer. She is currently working with members of the Survivorship Team at The Children’s Hospital of Philadelphia regarding research based practice initiatives.
- Mooney-Doyle, K. & Deatrick, J.A. (in press). Parenting in the face of childhood life-threatening conditions: The ordinary in the context of the extraordinary. Palliative and Supportive Care, PMID: 26462446.
- Hobbie, W., Ogle, S., Reilly, M., Barakat, L., Lucas, M., Ginsberg, J., Fisher, M., Volpe, E., & Deatrick, J.A. (in press). Adolescent and young adult survivors of childhood brain tumors: Life after treatment in their own words. Cancer Nursing, .10/1097/NCC.0000000000000266
- Knafl, G., Dixon, J., O��Malley, J., Grey, M., Deatrick, J., Gallo, A., & Knafl, K. (in press). Scale development by likelihood cross-validation. Statistical Methods in Medical Research. PMID: 21148193.
- Hocking, M.C., Hobbie, W.L., Deatrick, J.A., Hardie, T.L., & Barakat, L.P. (2015). Family functioning mediates the association between neurocognitive functioning and health-related quality of life in young adult survivors of childhood brain tumors. Journal of Adolescent and Young Adult Oncology, 4(1), 18-25.10.1089/jayao.2014.0022
- Froh, E.B., Deatrick, J.A., Curley, M.A., & Spatz, D. (2015). Making meaning of pumping for mothers of infants with congenital diaphragmatic hernia. JOGNN, 44(3), 439-449.10.1111/1552-6909.12564
- Mooney-Doyle, K., Deatrick, J.A. & Horowitz, J. (2015). Tasks and communication as an Avenue to enhance parenting of children birth-5 years: An integrative review. Journal of Pediatric Nursing, 30, 184_207.10.1016/j.pedn.2014.03.002
- Hocking, M.C., Hobbie, W.L., Deatrick, J.A., Hardie, T. L., & Barakat, L.P. (2015). Family functioning mediates the association between neurocognitive functioning and health-related quality of life in young adult survivors of childhood brain tumors. Journal of Adolescent and Young Adult Oncology, 4(1), 18-25. PMID:25852971.
- Beacham, B., & Deatrick, J. A. (2015). Children with chronic conditions: Perspectives on condition management. Journal of Pediatric Nursing, 30, 25-35.10.1016/j.pedn.2014.10.011
- Patterson, C.A. Chavez, V., Mondestin,V., Deatrick.J., Li, Y., & Barkakat, L. (2015). Clinical trial decision-making in pediatric sickle cell disease: A qualitative study of perceived benefits and barriers to participation. Journal of Pediatric Hematology and Oncology, 7(6), 415-422. PMID:25072368.10.1097/MPH.0000000000000216
- Palma, E., Deatrick, J.A., Hobbie, W.L. Ogle, S., Kobayashi, K., & Maldonado, M. (2015). Maternal caregiving demands for adolescent and young adult pediatric brain tumor survivors. Oncology Nursing Forum, 42(3), 222-229.10.1188/15.ONF.222-229