Why
should my baby and I participate in this study?
♥The
information on your child’s feeding behavior and calorie needs will greatly
benefit our understanding of how feeding and nutrition effect the growth and
development of infant's with congenital heart disease (CHD). It is essential
that we collect and compare information on infants with CHD who exhibit delays
or feeding problems with those infants who do not exhibit them. This will help
us to understand the factors that are different between infants with CHD who
develop and grow normally and those who fail to grow. Information about the
feeding pattern and calorie needs that influence positive growth and development
in children born with CHD are therefore essential to the success of the study.
After your child's information is combined with that of other children, we will
have a greater knowledge of the factors that influence growth and development in
children born with CHD. Your child's participation in this study will assist
nurses, doctors and other health care professionals learn more about the special
nutritional needs of infants with CHD, in order to provide better care in the
future. If any of the tests reveal an unexpected result, the information will be
shared with your primary care physician
if you request that we do so. ♥