
Feeding
Behaviors and Energy Balance Study of Infants with Congenital Heart Disease (CHD)
Over the past 20 years there
have been many advances in the treatment and care of infants with congenital
heart disease (CHD). Despite successful surgery, about half of all infants with
CHD fail to grow. It is uncertain if infants with CHD have difficulty feeding
or if they have added energy (calorie) needs. Therefore this study was designed
to objectively measure the feeding patterns and measure needs of infants with
CHD during the first year of life. We know that infants with CHD:
♥
Commonly have feeding problems
♥
Often require more calories to grow
♥
Often fail to gain weight despite successful surgery
To find out
more about how the effect of nutrition on growth and development in infants with
CHD differs from that of infants without CHD, this study will compare the growth
and energy metabolism needs of infants with CHD with those of healthy full term
infants. To address these identified feeding and nutritional issues, this study
can:
♥ Assess your infant’s energy (calories) needs
♥ Measure his or her feeding skills
♥ Monitor growth and development
Your infant
will have important state-of-the-art measurements during the first year of life,
which will include:
♥ Feeding ability, such as sucking and swallowing
♥ Energy expenditure when awake and while sleeping
♥ Growth and body composition measures
♥ Temperament, development and speech assessments
During
the study, we will evaluate how many calories your child drinks and eats and how
much his/her body uses while sleeping. We would also like to determine how much
he/she has grown, and his/her body composition (amount of muscle and fat). By
measuring these factors over a one-year period, we may identify changes in
development associated with growth, resting or total energy expenditure, food
intake, or body composition in children who were born with CHD.
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