THE IMPACT OF PALLIATIVE CARE PROGRAMMING IN NURSING HOMES. N. Strumpf , University of Pennsylvania School of Nursing, 420 Guardian Drive, Philadelphia, PA 19104

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  PARTICIPANTS: (for information about presenters, click here)

N. Strumpf, H.Tuch, P. Parmelee, & D. Stillman. (University of PA & Genesis ElderCare, Kennett Sq, PA 19348). Palliative Care in Nursing Homes: Response to Physical and Emotional Symptoms.

D. Stillman, S. Cunningham, & E. Capezuti. (University of PA & Emory University, Atlanta, GA). The Effects of a Palliative Care Program on Nursing Home Staff Attitudes Toward End-of-Life Care.

P. Parmelee, H. Tuch, N. Strumpf, D. Stillman, & A. Lewis (University of PA and Genesis ElderCare). Quality of Death in Nursing Homes: Evaluation of a Palliative Care Intervention.

H. Tuch & N. Strumpf. (University of PA & Genesis ElderCare). What Will it Take to Improve Palliative Care in Nursing Homes?

DISCUSSANT:
M. Mezey (NewYork University, Division of Nursing, NY, NY 10012).

Data will be presented from a 3 year study of palliative care (PC) in six nursing homes, sponsored by The Robert Wood Johnson Foundation as part of a broader initiative to promote excellence in end-of-life care. We examined the impact of staff training, nurse consultation, and an interdisciplinary team in 4 intervention and 2 control homes. The homes averaged 135 beds. There were 3 rural and 3 urban homes, all part of a large elder care network. Key findings from the papers will be discussed: 1) Documentation concerning physical and emotional symptoms was problematic; physical symptoms (notably pain) were more likely to be treated than emotional symptoms; 2) Staff in intervention homes showed greater awareness of specific end-of-life problems and valued palliative care teams; 3) PC programming was associated with clear differences in planning for death, life-sustaining interventions, and pain management; and 4) Until palliative care is effectively reimbursed and monitored, sustained improvement in end-of-life care for nursing home residents is unlikely.

   
 

PALLIATIVE CARE IN NURSING HOMES: ASSESSMENT AND TREATMENT OF PHYSICAL AND EMOTIONAL SYMPTOMS. N. Strumpf, H.Tuch, P. Parmelee, & D. Stillman, University of PA and Genesis Health Ventures.

Recent studies point out that pain is frequently reported by nursing home residents, often goes unrecognized, and is routinely under treated. We explored the ongoing impact, over an 18 month period, of a systematic palliative care program in six nursing homes (2 control, 4 intervention) on the assessment and treatment of physical and emotional symptoms. An investigator-generated symptom tracking form was used to review health care records monthly for evidence of any documented assessment and/or treatment plan on consented participants (N=151). Preliminary analyses indicate that there were no significant differences in assessment and treatment of symptoms between those residents judged appropriate for palliative care and those who were not, nor between intervention and control homes. Assessment and treatment were more likely to be recorded for physical rather then emotional symptoms, and consistent documentation of an assessment linked to a treatment plan was often missing. Since nurse specialist field notes and other data suggest that in the intervention homes, staff were attending to physical symptoms (especially pain), ongoing issues of accurate documentation in health records are discussed.

   
  QUALITY OF DEATH IN NURSING HOMES: EVALUATION OF A PALLIATIVE CARE INTERVENTION. P. Parmelee, H. Tuch, N. Strumpf, D. Stillman, A. Lewis. Genesis Health Ventures & Univ. of PA School of Nursing.

This presentation explores how implementing a palliative care (PC) program affected "quality of death" in long-term care, i.e., care received and symptoms experienced during the last days of life. Data were collected for all deaths in 9 Maryland SNFs from 04/99 - 12/00. For each, nursing staff reported advance directives and PC planning; cause & site of death; routine, palliative, and life-sustain-ing treatments; acute syndromes & symptoms; cognition & mood; pain, suffering, and the moment of death. Logistic regression identified differences among centers receiving 3 levels of PC programming: full implementation & consultation, brief education only, and no intervention. PC programming was associated with clear differences in planning for death, life-sustaining interventions, and pain management. PC sites also identified more symptoms of physical and emotional suffering, perhaps due to heightened sensitivity to those issues. Results are discussed in terms of effects of active PC training upon quality of death. Methodological issues are also explored in terms of effects of conducting intervention research upon overall quality of care in SNFs.

   
  WHAT WILL IT TAKE TO IMPROVE PALLIATIVE CARE IN A NURSING HOME?
H.Tuch & N.Strumpf. Genesis ElderCare & University of PA.

Nearly 20% of all deaths in the US occur in nursing homes, about 500,000 people annually. The medical literature raises significant concerns about the quality of end-of-life care that is currently provided to these residents. Our experience, derived form a 3-year project supported by the Robert Wood Johnson Foundation ("Palliative Care in the Nursing Home"), will be described within the context of policy changes we believe necessary to improve palliative care in nursing home settings. Specific reimbursement mechanisms tied to the RAI and RUGS categories, diminishing regulatory barriers, changes in staff training and support, increased community involvement, and changes in institutional processes and culture will be addressed.
Palliative care should be considered skilled care, reimbursed appropriately and monitored effectively. In the absence of systemic change, meaningful or sustained improvement in palliative care in the nursing home is unlikely.

   
   
THE EFFECTS OF ORGANIZATION OF CARE ON NURSE SENSITIVE OUTCOMES FOR OLDER ADULTS. E. Sullivan-Marx, UPenn, School of Nursing, Philadelphia, PA 19104-4217.

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  PARTICIPANTS
M. Bourbonniere, N. Strumpf, L. Evans, & G. Maislin. (University of Pennsylvania, Philadelphia, PA) Organizational Variables and Physical Restraint Use Among Hospitalized Nursing Home Residents

E. Sullivan-Marx, G. Maislin, & J. Carson (University of Pennsylvania, Philadelphia, PA) Hospital Staffing, Physical Restraint, & Patient Outcomes

L. Kurlowicz (University of Pennsylvania, School of Nursing, Philadelphia, PA) Geropsychiatric Liaison Nursing Consultation for Older Hospitalized Patients and Their Nurses

J. Sochalski (University of Pennsylvania, School of Nursing, Philadelphia, PA) Outcomes of Geriatric Rehabilitation for Frail Elders

A. S. Beeber & K.L. Schumacher (University of Pennsylvania, School of Nursing, Philadelphia, PA) From Hospital to Home: A Case Analysis of a Critical Transition for Older Adults with Cancer and Their Family Caregivers


DISCUSSANT:
J.Kayser-Jones (University of California San Francisco, San Francisco, CA)

Although innovative clinical interventions in hospitals and specialized units of care have demonstrated improvement in outcomes of care for older adults, in reality the majority of older adults experience health care in systems that are not organized for their specific needs. The organization of nursing care directly impacts patient outcomes yet little is known about the effects of organization of care pertaining to older adults who are acutely ill. Understanding the relationship between delivery of care and outcomes that are sensitive to nursing care is particularly relevant to frail, vulnerable older adults. Both nurses and advanced practice nurses can influence care for older adults at risk for poor outcomes but their ability to affect improvement in outcomes is dependent on a responsive organization. In this symposium, we present five research papers that examine and discuss organizational relationships between nursing care and nurse sensitive patient outcomes for frail vulnerable older adults who have experienced acute illness.
   
  ORGANIZATIONAL VARIABLES AND PHYSICAL RESTRAINT USE AMONG HOSPITALIZED NURSING HOME RESIDENTS M. Bourbonniere, N. Strumpf, L. Evans, & G. Maislin, School of Nursing, University of Pennsylvania, Philadelphia, PA 19146

Existing research suggests that nurses, physicians, patients, and families consider registered nurse (RN) staffing a critical factor in preventing physical restraint use, although studies have not addressed potential relationships among these variables. Using data from a study designed to test the impact of an advanced practice nurse intervention on restraint use among hospitalized nursing home residents, this analysis examines relationships between RN skill mix, patient-RN ratios, patient-total staff ratios and physical restraint use, controlling for cognitive status, treatment interference, behavioral phenomena, fall risk, and acuity on admission. 171 nursing home residents, with a mean age of 84.9 years, were admitted to one of eleven medical-surgical units of a large urban hospital. Rate of restraint was 26%. Hospital staffing varied considerably. RN skill mix ranged from 25% to 100% (Mean=65%); patient to RN ratios ranged from 0.5 to 16 (Mean=6.7); and patient to total nursing staff ratios ranged from 0.4 to 7.7 (Mean=4.1). Univariate analyses indicate a significant relationship between patient-RN ratios and restraint use. Discussion will focus on issues related to care of frail elders in restructured environments. (NINR 1 F31 NR07532-01)
   
  HOSPITAL STAFFING, PHYSICAL RESTRAINT, & PATIENT OUTCOMES
E. Sullivan-Marx, G. Maislin, & J. Carson (School of Nursing, University of Pennsylvania, Philadelphia, PA)

We examined the effects of hospital staffing (RN-patient ratios and staff mix) on physical restraint use and discharge outcomes using a retrospective case cohort design to conduct a secondary analysis of 9222 hip fracture patients in 20 urban teaching hospitals in PA, NJ, VA, and TX from 1983-1993. Rate of restraint use for hospitalized hip fracture patients was 31.5%. Mean age of subjects was 82.6, 80% were women, and 87.4% were white, 22.3% were admitted from nursing homes, and 62.6% were independent in activities of daily living prior to fracture. Data on nurse staffing were obtained from the American Hospital Association Annual Hospital Survey. Higher nurse patient ratios and greater RN skill mix were associated with lower physical restraint use in bivariate analysis (p<.0001). We used a mixed model to test the effects of staffing on restraint use, and of restraint use on patient outcomes, controlling for year, hospital, age, gender, race, cognitive impairment, type of fracture, pre fracture functional status, and severity of illness. Patients who were not restrained had significantly (p<.0001) lower inpatient mortality, lower death at 30 days postoperatively, fewer pressure ulcers, and were more independent in feeding and grooming. Better hospital staffing and lower restraint use contributed to better outcomes but the effect was not significant. Discussion focuses on testing models of organization on nurse sensitive outcomes and effect of organization on physical restraint use. (NINR 1 KO1 NR 00157-01)

   
  DEPRESSION AMONG OLDER AFRICAN AMERICANS USERS OF AN ACADEMIC
OUTPATIENT REHABILITATION PROGRAM
L. H. Kurlowicz, Ph.D., RN, CS, L. K. Evans, DNSc, RN, FAAN, and S. M. Marcus, Ph.D., School of Nursing, University of Pennsylvania, Philadelphia, PA.

Using depression measures containing a range of somatic items, prevalence estimates of depression in clinical samples of older African Americans range from 11% to 33%. The tendency of this group to report somatic symptoms over sadness raises questions about the assessment of depression, especially among those with multiple medical comorbidities. The purpose of this study was to explore the prevalence of depression among older African American users of an academic outpatient rehabilitation program using a depression tool with a low somatic item content. Correlates of depression in this population also were explored. Medical records of 150 older, urban, African Americans seen over a two-year period were examined. Depression was assessed on admission using the 30-item Geriatric Depression Scale {GDS}. Using a GDS cut-off score for depression of 11 or greater, 30% of the sample (mean age = 75.5 + 7.16, range = 65-95, 75% female) scored positive for depression. Nine percent also reported having suicidal thoughts within the previous week. Consistent with existing literature, depressed patients, compared to the non-depressed group, were significantly younger, more suicidal, were more likely to rate their general health as poor, had higher mean ratings of pain, & limited their social activities more often. Six GDS items also were found to have little ability to discriminate between depressed and non-depressed patients: satisfaction with life, getting bored easily, prefer staying at home, find life exciting, getting started on new projects, & full of energy. Whether this is related to the generally high levels of medically associated disability in this sample, or cultural beliefs or preferences, is unclear.

   
  OUTCOMES OF GERIATRIC REHABILITATION FOR FRAIL ELDERS.
J. Sochalski, PhD, RN, FAAN, School of Nursing, University of Pennsylvania, Philadelphia, PA.

The aim of this study was to assess the contribution of the Collaborative Assessment and Rehabilitation for Elders (CARE) Program--a comprehensive, outpatient, short-term intensive rehabilitation program-- to improvements in levels of function and to reductions in the use of inpatient care among frail elders experiencing functional decline. The study sample comprised 308 patients enrolled in CARE between October 1993 and April 1997. Data sources included CARE Program records, hospital discharge records for the each patient obtained from a statewide inpatient database, and the National Death Index. Significant improvement was found in functional status (measured by change in FIM scores) for patients who completed their plans of care (t=10.37, p < .001), as compared to those patients who did not complete their plans (t=1.29, p=ns). A significant decline was noted in the number
of inpatient days in the year after CARE as compared with days in the year before CARE admission. Geriatric rehabilitation services have demonstrated their effectiveness in reversing or halting declining functional status, and this study showed the additional benefit of reduction in inpatient care. Appropriate referral appears to be key to improved outcomes for those participating in these programs. (NINR K07-NR00090; NIA R03--AG16802)

   
  FROM HOSPITAL TO HOME: A CASE ANALYSIS OF CRITICAL TRANSITIONS FOR OLDER ADULTS WITH CANCER AND THEIR FAMILY CAREGIVERS A. S. Beeber ; K. L. Schumacher; (University of Pennsylvania, School of Nursing, Philadelphia, PA 19104)

The transition from hospital to home poses challenging care issues and causes stress for cancer patients and their caregivers. These predicaments are magnified when the person with cancer is older. In a study discerning caregiver skill among family members of persons with cancer and the development of a caregiving assessment tool (Family Caregiving Skill Profile), caregivers were interviewed about their experiences. Through a case analysis derived from these qualitative data, the experience of the caregiving for an older adult with cancer and the transition from hospital to home is examined. Changes in the structure of care for older adults, including short hospital stays and changes in nurse staffing, have led to decreased support for caregivers and patients upon discharge. This often results in feelings of uncertainty and unpreparedness by caregivers and patients during this critical transition. Discussion will include issues around the post-discharge critical time period, cancer symptom management in older adults, patient and family stress, coping strategies, and caregiver skill. The implications of these findings for research and practice will also be discussed. (NINR #R01 NR05126, John A. Hartford Foundation's Building Academic Geriatric Nursing Capacity Scholarship Program through AAN)
   
  Source: The Gerontologist, Vol. 41, Special Issue, 1, October 2001
 

Hartford Center of Geriatric Nursing Excellence
University of Pennsylvania - School of Nursing - 420 Guardian Drive
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Last updated January 27, 2004