Frontotemporal Degeneration Caregiver Conference
Saturday February 4, 2012 |
Keynote Presentation:
On Becoming a Fearless Caregiver
GARY BARG
Caregiver Advocate
Founder, CEO & Editor-in-Chief
Today's Caregiver |
Description:
Frontotemporal degeneration (FTD) is a progressive neurodegenerative condition that strikes adults at a relatively early age, usually in the 40s and 50s, and has devastating consequences for the patient, the family, and society. In this day-long Caregiver Conference, Dr. Murray Grossman along with experts in the field of FTD will review medical causes and treatments; individual management of patient needs from nursing, social work, and physical/occupational therapy perspectives; family counseling, and disease management. Panel discussions and topic specific break-out groups will provide opportunity for dialogue. Topics:
- Frontotemporal Degeneration - Murray Grossman, MD, EdD
- Genetics -
- New Treatments - Kurt Brunden, PhD
- Amyotrophic Lateral Sclerosis - Leo MCCluskey, MD
- Corticobasal Degeneration - H. Branch Coslett, MD
- Decision Making in Advance Illness - Mary Ersek, PhD, RN, FAAN and
Marianna Diloyar, MPH, RN
- Advocacy -
- Legal and Long Term Planning - Paul Feldman, Esq.
- Community Resources - Sharon S. Denny, MA
To Register:
There is no charge to attend this event, but space is limited. Registration includes presentations, lunch and post program networking reception. REGISTER: http://www.surveymonkey.com/s/UPennConference2012
AFTD is sponsoring caregiver scholarships to assis those in need with travel expenses. Please contact info@theaftd.org for more information.
Sponsors:
University of Pennsylvania Frontotemporal Degeneration Center
University of Pennsylvania Center for Neurodegenerative Disease Research (CNDR)
University of Pennsylvania Department of Neurology
University of Pennsylvania School of Nursing
Association for Frontotemporal Degeneration (AFTD)
Alzheimer’s Association Delaware Valley Chapter
Amyotrophic Lateral Sclerosis Association
Location:
University of Pennsylvania
Biomedical Research Buildiing II/III
Auditorium
421 Curie Blvd.
Philadelphia, PA 19104
DIRECTIONS
There are several parking facilities located on or near campus, as well as metered street parking. Street parking spaces are usually limited to either 2 or 3 hours and cost $1.50 per hour. Some garages may charge a flat fee and prices vary. Please note that Penn does not validate parking. Penn is located in a city setting so please allow ample time to find parking.
Recommended garages and lots: - South Street and Convention Avenue;
- Penn Tower Hotel (34th and Civic Center Boulevard);
- Sheraton Hotel (36th and Chestnut Streets);
- 40th and Walnut Street;
- 32nd and Walnut Street;
- 38th and Walnut Street (please use the 38th Street entrance).
Time:
Sign-In: 7:30 am
Program Starts: 8:00 am
Program Ends: 5:00 pm
Reception 5:00-6:00pm
Agenda:
Click here to see the conference agenda.